Support for families facing the challenges of epilepsy is an important service and one that goes beyond a simple call. Our Information & Support Program includes ongoing one-on-one support via phone and email, a monthly support group, and an emergency medication fund.
A diagnosis of epilepsy can be a very stressful time for patients and their families. Trained, compassionate staff is only a phone call away at the Epilepsy Foundation of Delaware. The one-on-one support offered is tailored to best meet each family’s needs. Sometimes it is a quick call for a resource. Other times it is advice and accompaniment to a child’s individualized education plan (IEP) meeting or a supportive relationship that lasts for years. Clients are checked in with regularly until they indicate no further need for ongoing support.
Issues addressed through the Information & Support Program go beyond medical concerns. Employment and transportation are important concerns for many patients. Help is offered through work site sessions for those experiencing difficulty with employment or assistance with the appeals process for special transportation services.
Our “meet and greet” group meets the second Wednesday of each month in Newport, Delaware and offers individuals with epilepsy and their families a non-judgmental forum in which to exchange information, concerns, frustrations, and progress. Our emergency medication fund covers a one-monthly supply of prescribed epilepsy medication for individuals in need.
The Epilepsy Foundation of Delaware is a partner of Family SHADE, which stands for Support and Healthcare Alliance of Delaware, a statewide alliance of nonprofits working to ensure families with special needs have access to resources, information, and supports. When we are unable to provide a direct service, we assist clients in connecting with providers who can.
Please call us at (302) 999-9313 today for support. If a staff member is unable to take your call, please leave a message.